Family on a mission: Titus Strong Foundation raising awareness for NEC
NEWS AVAILABLE AND SPECTRUM AND
THE WRAL APP ON YOUR TV OR YOUR
STREAMING DEVICE A FAMILY IS ON
A POWERFUL MISSION TO HELP
OTHERS AFTER THE LOSS OF THEIR
SON TITUS TO NECKER TIES.
THE INTERNAL COLLIDE U.S. CAMP
PARKER AND HIS FAMILY FOUNDED
THE TIGHT, A STRONG FOUNDATION
ESSENTIALLY IT'S DEDICATED TO
RAISING AWARENESS ABOUT NECK
AND SUPPORTING FAMILIES
AFFECTED BY THIS DISEASE.
IN FACT, CAN PARKER'S HERE TO
TELL US A LITTLE BIT MORE ABOUT
THE WORK THAT YOU'VE BEEN DOING
IN THE UPCOMING EVENT TO MAKE A
DIFFERENCE. THANK YOU SO MUCH
FOR JOINING US HERE FOR SO MUCH
FOR HAVING ME. SO FIRST OF ALL,
I'M SO SORRY FOR YOUR LOSS.
THAT IS JUST AWFUL TO HEAR
THAT. TELL ME A LITTLE BIT
ABOUT HOW YOU AND YOUR FAMILY
HAVE BEEN TRYING TO TAKE WHAT
HAPPENED TO SIGN AND MAKE THIS
INTO SOMETHING THAT'S SOMEWHAT
POSITIVE FOR OTHERS. YEAH,
ABSOLUTELY. SOURCE AND TITUS
WAS BORN ON JANUARY 10TH OF
THIS YEAR AND HE WAS BORN 3
MONTHS EARLY. BUT THAT
UNFORTUNATELY, ON FEBRUARY,
7TH OF 2024, HE PASSED AWAY
FROM THAT GOOD.
>> ONE OF THE BIGGEST REASONS
WHY WE STARTED THAT HAD A
STRONG FOUNDATIONS BECAUSE MY
MOM, WHO'S BEEN A MEDICAL
PROFESSIONAL FOR 30 PLUS YEARS
WHEN TIMES FIRST GOT DIAGNOSED
WITH NECK, SHE SAID WHATS NECK.
AND SO IF MY MOM WHO'S BEEN IN
THE MEDICAL FIELD FOR 30 PLUS
YEARS, HAD NO IDEA WHAT NECK
WAS WE FOUND THAT IS
UNACCEPTABLE. AND SO WE'RE LIKE
WE WE WE CAN'T LET FAMILIES
FIND OUT FOR THE FIRST TIME
THAT THE BABY HAS A 50% CHANCE
OF SURVIVING. IF THEY GET
DIAGNOSED WITH NECK. AND SO WE
WERE LIKE WE HAVE TO DO
SOMETHING TO HONOR OUR SON'S
LEGACY. HE WAS A LOT FOR 28
DAYS. ONE MAN, HE'S MADE A HUGE
IMPACT. BUT WE ALSO WANT TO
BRING HOPE TO FAMILIES AND NOT
LET FAMILIES GET BLINDSIDED
BY A DIAGNOSIS OF NET FOR THE
SWEET BABY. THAT'S IN THE NICU.
I DIDN'T REALLY KNOW A LOT
ABOUT IT. WHEN WE TALKED BEFORE
WE GOT HERE, I WAS TRYING TO
PRONOUNCE IT AND THEN YOU
CORRECT TO BE. BUT IN A WAY
WHERE YOU KNOW THAT OTHER
PEOPLE ARE NOT FAMILIAR WITH
THIS. AND SO I WAS JUST TRYING
TO SPREAD THE MESSAGE. WHAT HAS
BEEN WOULD YOU SAY? THE BIGGEST
STRUGGLE THAT YOU'VE HAD TRYING
TO SPREAD THAT AWARENESS FOR
THIS AWFUL DISEASE?
>> YEAH, IT'S UNLESS YOU'RE IN
THE NICU YOU HAVE NO IDEA WHAT
IT IS. AND SO AS I HEARD WAS
TALKING TO SOMEONE AND THEY
COMPARED IT TO THE WORD CANCER
TO EVERYONE ELSE IN THE WORLD.
BUT WHEN YOU'RE IN THE NICU,
WHEN YOU HEAR THE WORD NECK.
>> IT'S LIKE GETTING IT TO
CANCER DIAGNOSIS. AND SO WE
JUST WANT TO BRING AWARENESS
TO THAT AND LET FAMILIES KNOW
THAT. HEY, THIS IS A REALITY.
AND IT'S A POSSIBILITY THAT
YOUR PREMATURE BABY COULD GET
NECKTIES. AND IN A
KALEIDOSCOPE, THERE IS HOPE.
AND THERE IS ADVANCEMENTS IN
RESEARCH, WHICH IS WHY WE
STARTED THE TIGHT, A STRONG
FOUNDATION FOR MORE WILLING
SOMEONE WATCHING RIGHT NOW AND
IS ABLE TO BE EDUCATED BASED
OFF WHAT YOUR BANK'S PLAYING
TODAY. BUT YES, I'M COMING UP
HERE. YOU'VE GOT THE UPCOMING
CHRISTMAS AND A CURE OF ANY
KIND OF SOUNDS LIKE A WONDERFUL
WAY TO HONOR YOUR SON'S MEMORY.
WHAT CAN PEOPLE EXPECT WHEN
THEY ATTEND AND WHEN EXACTLY IS
CHRISTMAS AND A CURE IS GOING
DOWN DECEMBER 6TH THIS FRIDAY
AT 06:30PM.
>> IT'S OUR FIRST EVER EVENT
AS THE TIDE OF STRONG
FOUNDATION. OUR FIRST ANNUAL
SILENT AUCTION.
>> AND SO PEOPLE CAN EXPECT
TO HEAR FROM MULTIPLE MEDICAL
PROFESSIONALS FROM THE UNC
CHAPEL HILL HOSPITAL SYSTEM.
AND WE ALSO WILL HAVE THE
OPPORTUNITY TO HEAR FROM THE
LEAD RESEARCHER THAT HAS A OF
FULL LAB DEDICATED TO NECK OR
TIES IN TO COLLIDE U.S.
RESEARCH. AND THOUGH THEY'LL
HAVE DINNER, THEY'LL HAVE AN
INCREDIBLE OPPORTUNITY TO BID
ON SOME INCREDIBLE SILENT
AUCTION ITEMS. SOME RAFFLE
ITEMS IS JUST GOING TO BE
INCREDIBLE NIGHT WHERE WE GET
TO BRING OUR MISSION TO MANY
PEOPLE AND RALLY AT A SITE
ABOUT THIS MODEL DURING THE
ENTIRE TIME, WHICH IS EXCITED.
JUST REAL QUICK BEFORE WE WRAP
THINGS UP HERE FOR THOSE WHO
MAY NOT BE ABLE TO GO ON
FRIDAY, BUT THEY STILL WANT TO
LEARN ABOUT HOW CAN WE LEARN A
LITTLE BIT ABOUT THE TIMES
FOUND? YEAH, ABSOLUTELY.
SO WE STILL HAVE 20 TICKETS
AVAILABLE TO CHRISTMAS AND A
CURE. I MEAN, YOU CAN GO TO TIE
THE STRONG TO OREGON PURCHASE
THOSE THERE. BUT IF YOU ARE
ABLE TO MAKE IT ON DECEMBER
6, YOU CAN JUST ALSO GO TO OUR
WEBSITE.
>> TYLER, STRONG DOT ORG.
YOU CAN FIND US ON TIGHT.
A STRONG FOUNDATION ON SOCIAL
MEDIA AND YOU CAN READ ABOUT
OUR MISSION. YOU CAN LEARN MORE
ABOUT OUR SWEET SON TITUS AND
HIS LIFE. AND THEN YOU CAN ALSO
DONATE AND PARTNER WITH US AS
WE HELP DR. GOOD UNC, CHAPEL
HILL AND EVENTS FOR RESEARCH.
AND I CERTAINLY HOPE THAT
PEOPLE ARE WATCHING THIS TODAY
AND ARE ABLE TO TAKEAWAY FROM
IT AND TO LEARN A LITTLE BIT